Playing Catch Up

So as you all know, I haven't been online in forever, and I haven't updated in forever either.
So, I had my Clinic appointment on November 19th, and my PFT's were AMAZING, the best they have ever been without the help of IV's. They were 97%.
Haven't had IV's in 3 years. Nothing horrible from Dr. Whittaker, just that I need to exercise more.
My ENT appointment went okay, he said that I will need another sinus surgery eventually to remove some polyps from my nose, but as long as my PFT's stay this good it's not something that needs to be dealt with now. It will need to be done if it starts affecting my PFT's, in the sense that they decline.
So pretty much all good news from them.
Last week got a call from the Women's Center at Fletcher Allen to set up my appointment to meet with the Genetic Counselor. So that's set for December 8th.
This will be our first appointment, don't quite know what to expect, so, if anyone can give me a heads up, please do so.
Thanksgiving went well, was a busy day. We went to my parents in the morning, and then to Jerry's dads in the afternoon.
He went Black Friday shopping.
I'm going Christmas shopping for him this weekend. Pretty excited that Christmas is almost here! Can't believe it!!
Hoping to get on and update a bit more often. Hoping to let everyone know how our Genetic Counseling appointment goes.

Clinic Appointment--August 20, 2010

I had my clinic appointment on August 20th. This is the first time I've been able to get online to post about it.
It went great!!
My PFT's went back up. They went from 91% to 94%. So we've officially ruled out the Generic Zithromax as the cause to the decrease back in May from 96% to 91%.
We've decided that the cause of the drop back in May was due to allergies or the weather.
So thankful that my numbers went back up and I am healthy.
I will admit I was a little nervous, a little concerned that they may have decreased more, but when I was blowing mid 90's on the screen it felt good. It made me really happy. :)
Jerry was really happy and proud of me too.
Dr. Whittaker-LeClair came into the room asked me the regular questions and felt my stomach and that was the extent of the appointment. My 6 month is in November and before I go to it, I have to get my yearly Glucose Screening done.
I hate those. :(
You have to drink this horrible sugar drink, I usually get the Lemon-Lime one, it tastes like really flat Sprite. But the worst part, is the having to sit for 2 hours at the hospital, I can't leave.
But I drink the drink, sometimes they draw blood at the hour mark, sometimes they don't, but they always draw blood at the end of the 2 hours. Then I can leave.
It was a pretty good day overall, and I'm really proud of myself, and how healthy I've been staying.

Feels Like Home---Chantal Kreviazuk

Who's On First--Abbott and Costello

boredom.....

so many things to do, yet I don't want to do any of them.
The 3 day stampede is almost here and I'm so excited. Hopefully they will go way beyond what they raised last year.

http://www.threedaystampede.org/

Headache.......and working out.

Started out the morning not feeling well, had a headache. Last night something didn't agree with me at dinner, had a stomach ache.

But woke up with a headache, couldn't decide if it was a sinus headache because of the weather, or a headache from not enough sleep. I laid back down after I got some things done this morning. Felt better when I got up.

Thank God it's Friday and I don't have to get up at 5 am tomorrow.

It also means no workouts til Monday again. Have today then free for the weekend.

Been busting my butt since I started working out again. I feel good when I am working out, but I get discouraged because I don't really ever see results. At least I don't see them, everyone tells me I look good or whatever but I don't see a difference.

This time I'm sticking to it though, because now that I had been working out, then stopped, there really was a difference, I can feel it and see it.  So time to get back in the saddle and toughen up. I want my body back.

The body I had before I went on the Depo Provera birth control shot and gained 30 pounds in a matter of a few months. I've been off of it for a little over 3 years, but trust me, that definitely doesn't matter. Still have all the weight.  I want to try and lose that too.

Anyone have any good helpful tips or support?

Reading

So, I haven't posted in awhile, figured I should update everyone. I spent the last 2 weeks at my parents place, soaking up the sun, and enjoying the lake and the pool. 

It was pretty nice, been back at home since Friday. It feels good to be home after so much time away, although the place is a mess. 

So much to do.  

Finished reading book 7 in the House of Night Series, loved it. It's called Burned. Book 8 doesn't come out til next year. 

Just started a new book the other day called Once Dead, Twice Shy. It's pretty good so far, it has a sequel too that just came out in May called Early to Death, Early to Rise. 

I'm so glad I finally started liking reading, it definitely passes the time, and I have found so many books I'm interested in. I can thank my brother for that actually. It all started with the Twilight Saga. He bought me Twilight, and I loved it, since then I've been hooked on Vampire books, and other books with that death like twist. HAHA  For instance, Ghostgirl, Ghostgirl:Homecoming.  Bloodsucking Fiends, You Suck, the House of Night Series, and now the book I'm reading now.

So big thanks to my brother. He got me to like reading. YAY!

CF Stuff

My CF Meds



92% on my PFT's, and I still have my CF lungs.

My latest PFT results. From May.

PenPals

I am loving the PenPals group that Kayla Messineo started. 

I have met a really nice girl, named Kirsten.  I already knew Shannon, but we are becoming closer, and I'm hoping to become friends with another girl named Amber. 

CF is a tough disease and the only people who know what I'm going through are other CFers. I'm so happy that Kayla came up with this group.

http://www.snpenpals.blogspot.com/

Thank you so much Kayla, what you're doing is amazing, and you are making so many people and children happy. :)

Another Plan Down The Drain

I was supposed to go to my friend Kendra's house til sometime Friday, now it's not happening because she has something going on with her Sinuses and her husband John has a sore throat, and she doesn't want me to catch anything. So now we are going to try for next week.   

Last Saturday (the 12th) my friend Chelsea was supposed to come to my birthday party and then we were going to have a sleepover, but she got Bronchitis.  

My friend Heidi was planning on coming up to visit in July and we would have finally gotten to meet for the first time in person, but the train station said she called to late to make accommodations.  I was thinking to myself, that's still like a month away.  She also said there isn't any other train stations that she could use. 

All my plans I was so excited for this summer are not happening. It sucks, I know at some point Chelsea and I are going to have our sleepover, but still, its just like I know at some point I'll go to Kendra's fora few days.

But it is frustrating to have all these plans then have everything fail, and its all washed down the drain.

I really hope that things all come together in the end, and that most of my plans for the summer happen.

Stomach Bug

So I don't know what was going on yesterday, but I wasn't feeling good during the day, then last night before bed, I started getting a really bad stomach ache. It kept me up just about the whole night. It was awful, I had the sweats going, I was hunched over in pain. At one point I thought I was going to throw up and I don't throw up. 

I got up this morning at 5, like I always do when Jerry works during the week, and woke him up. I decided that I was just going to go back to bed, I would do my Acapella when I got up. 

I woke up around 11 am. I felt better but not great, have a headache. I even took a nap later on in the afternoon. 

Hoping I will sleep better tonight and feel all better tomorrow.

Luckily I was able to get some of the cleaning done.

Acapella

I finally got my new Acapella the other day, I used it for the first time last night. It has so much more power, it pushes a lot stronger vibration into my lungs than my old one.
I coughed up a lot of mucus. I thought at one point I was going to throw up from how hard I was coughing.
Everyone tells me how surprised and proud they were that I finally made the decision to become a little more independent. I don't blame them, I used to be very determined to not change how things went.
But now that I am, it's making Jerry's life easier and also my life easier. I'm now able to go and spend time with my friends and sleep over their houses.
Just like next week, I'm spending three days at my friend Kendra's house with her two daughters, Leah and Rachel. It's very exciting, it'll be my very first time away from home where I don't need someone there to do my Chest PT, it'll just be me. I've never been able to experience that, now I can.
I'm hoping to post a video at some point of me using my new Acapella. Jerry said he would video tape me using it, so that everyone can see how it works. I mention the Acapella to people, and some CFers have never heard of it. That surprised me. I thought everyone would have known about it.  It's similar to the Flutter, you do the same breathing techniques, but it looks a little like the AeroChamber that you would put your inhalers into. Hopefully I can get that video up soon.

My Title

So, my first entry, on my first blog.
The first thing I must say is THANK YOU to my good friend Lezly Hodge for giving me the title for my blog, she came up with it. Which I know, makes me sound completely unimaginative because I couldn't come up with my own title, and yes I must agree. I thought for weeks about what to make my title, finally I asked my CF friends on Facebook, and luckily Lezly came along with such a brilliant idea.
So thank you very much Lezly.